Unity. Commitment. Progress.
CALL US NOW 706.619.6029
DONATE NOW

ABOUT PARTNERSHIP

The Sickle Cell Community Consortium is a multi-stakeholder collective comprised of community-based organizations (CBOs), patient and caregiver advocates, community partners and healthcare and research advisers. Collectively these partners form the General Assembly of CBOs, the decision-making body of the Consortium. Organized in a manner similar to the United Nations, each partnered CBO retains their autonomy while joining collectively with other sickle cell stakeholders to apply a model of Collective Impact to identify, prioritize and address needs and gaps within the sickle cell community.

All partners participate in the yearly Leadership Summit and General Assembly of CBOs. This Summit is designed to provide a series of workshops and seminars to provide training and guidance in Best Practices for maintaining effective and efficient CBOs., including sessions on grant writing, developing corporate and community partnerships, CBO branding, marketing and messaging, and more. The Summit also hosts the General Assembly, during which sickle cell stakeholders apply a model of Collective Impact to identify and prioritize major needs, gaps and concerns within the sickle cell community. All stakeholders carry equal weight in deciding the collective priorities for that calendar year. All partners are asked to participate in developing and implementing solutions to the problems identified. Each partner assists in solution implementation for at least one prioritized project and must serve on at least one Consortium Committee for that calendar year. All elections and committee selections occur during the business meeting during the annual summit. For more information on Consortium organization, committees or the 2016 General Assembly, visit the ABOUT US section.

Currently there isn’t a fee or membership dues for partnering with the Consortium. Partners are asked to participate in at least one main fundraising activity organized by the Consortium each year. All partners have access to CBO resources, including access to the online webinar platform (up to 100 participants), yearly website and social media checkups, access to the Consortium finance team, best practices webinars, discounts on website development and tax document preparation, group discounts to sickle cell conferences and symposiums. By combining our voices Consortium partners are able to make a greater impact in our communities. Partner benefits are growing and evolving. Private login for additional services and benefits in development.

 

FAQ

Q: Is there a fee to partner?
A: Currently there isn’t a fee or membership dues for partnering with the Consortium. A partner fee is the decision of the General Assembly and must be voted upon by a quorum prior to implementation.

Q: Do partners raise funds for the Consortium?
A: Partners are asked to participate in at least one main fundraising activity organized by the Consortium each year.

Q: What are the benefits of joining the Consortium?
A: All partners have an equal voice (regardless of size) in identifying and prioritizing the projects, platforms and initiatives of the Consortium. Partners have access to CBO resources, including access to the online webinar platform (up to 100 participants), yearly website and social media checkups, access to a non-profit accountant for annual review, best practices webinars, discounts on website development and tax document preparation, group discounts to sickle cell conferences and symposiums. By combining our voices Consortium partners are able to make a greater impact in our communities. Partner benefits are growing and evolving. Private login for additional services and benefits in development.

Q: What are the duties of Partners?
A: Partners are requested to attend the annual Leadership Summit & General Assembly (financial assistance available). Each partner must serve on at least one committee and contribute to a prioritized project or initiative. Partners are asked to support a yearly fundraiser for the Consortium.

Q: What are the requirements for Partnership?
A: We welcome ALL sickle cell CBOs, patients, advocates and community supporters.

Patients and Caregivers must submit an Advocate Partnership form and complete their community profile.

Their is a credentialing process for CBOs. Credentialing occurs annually Sept. 1st to Dec. 31st. Current and prospective CBOs must submit documentation verifying non-profit status and annual submission of IRS Form 990. (We do not require the actual form, only verification of submission. Assistance is available for all partners). Credentialed partners must update their Partner CBO Profile annually.

Patient organization and groups are welcome to join the Consortium. These groups have not yet gained non-profit status, but are actively working towards this status or are sponsored by a healthcare provider or entity. Existing credentialed partners may also serve as sponsors for patient groups. This group must also complete a Partnership Form and must update their Partner Profile annually. All forms can be found at www.sicklecellconsortium.org