Are you new to advocacy and not sure where to start to make a difference in the lives of those with a rare disease? Join the EveryLife Foundation and Global Genes for RARE on the Road in Kansas City, Missouri for the opportunity to learn from and connect with other rare disease patients and caregivers in your community. This free event will highlight topics from capacity building to a patient’s role in drug development, with breakout sessions and hands-on workshops.

Monday, June 5, 8:30am – 4:30pm

Kauffman Foundation Conference Center

Conference is located in Town Square.

Free parking is availabe on-site.