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Georgia boy cured of Sickle Cell Disease thanks to sister
One 7-year-old who suffered his whole life from sickle cell disease now has a second chance thanks to his older sister’s selfless donation.
“They are super close,” mom Tanya James of Conyers, Georgia, told ABC News. “I don’t think Kyle understood the magnitude of what she was doing. One day, he had an ‘ah-ha’ moment and he came to my room and said, ‘Kendall saved my life.’ He asked if we could give her a trophy because she’s a ‘superhero.'”
Case Study: Rare Patients With Sickle Cell Disease Live Nearly Twice as Long as National Average
Longevity Linked to Care Maintenance and Family Involvement
(WASHINGTON, October 4, 2016) — With a national median life expectancy of 42–47 years, people with sickle cell disease (SCD) face many challenges, including severe pain episodes, stroke, and organ damage. Compounding these complications is that SCD — an inherited, lifelong blood disorder characterized by rigid and sickle-shaped red blood cells that stick to the blood vessels, blocking blood flow — has only one FDA-approved treatment, no widely available cure, and some people may have limited access to appropriate care.
Gene therapy to cure sickle cell anemia in final stages of development
Scientists are finalizing plans to use gene therapy to treat one of the world’s most widespread inherited diseases – sickle cell anemia. The technique could begin trials next year, say researchers.
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