Are you new to advocacy and not sure where to start to make a difference in the lives of those with a rare disease? Join the EveryLife Foundation and Global Genes for RARE on the Road in Portland, Oregon for the opportunity to learn from and connect with other rare disease patients and caregivers in your community. This free event will highlight topics from capacity building to a patient’s role in drug development, with breakout sessions and hands-on workshops.

Saturday, July 15th, 8:30am – 4:30pm
Shriners Hospital for Children
Conference is located on the 7th floor in the auditorium.
Free parking is available on-site. If using public transportation, take Tri-Met bus #8 Jackson Park from downtown Portland.