This meeting serves three purposes:
1. CBO Best Practices and Expert Advocacy Training – Lectures, workshops, roundtable discussions, and panels all focused on supporting the development and sustainability of strong, effective CBOs and independent patient/caregiver advocates.
2. Consortium annual Business Meeting – Reports from the 10 main infrastructure committees and review of all items placed on the Business Docket. All elections, addendums and amendments occur during the Business Meeting.
3. Convene the General Assembly of Patients, Caregivers and CBOs.
The General Assembly is the primary organ and decision-making body of the Consortium. Comprised of representatives from all partner CBOs, as well as, independent patients/caregivers, this group identifies and prioritizes problems, needs and gaps in the sickle cell community, and then works collectively with other partnered groups to define and execute mutually beneficial and sustainable solutions.
Click here to know more about The General Assembly.
2016 Leadership Summit Program Book.
2017 Leadership Summit Program Book.
2018 Leadership Summit Program Book.
2019 Leadership Summit Program Book