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The Sickle Cell Community Consortium is a collaborative effort between Credentialed Community-Based Organizations (CBOs), Sponsored Patient Organizations, Patient and Caregiver Advocates and Community Partners.  For more about Credentialing, visit our CBO Credentialing page.

Breaking the SSickle Cell Cycle Foundation, Inc.


Breaking The Sickle Cell Cycle Foundation Inc., is a non-profit organization that promotes and provides awareness, education and prevention of sickle cell disease within the our community through education and service.

Awareness: Increasing awareness of SCD/SCT through formal and informal educational sessions allow participants to become aware of the disease and the potential effects it can have in their lives and future generations. By providing trait testing, we are able to inform individuals of their SCT trait status and educate them on what that information means to them regarding their health and family.

Delegates: Dr. Lametra Scott, Olivia Ruiz-Branham, Kimberly Blackmon, Chrystal Holmes
State: Tennessee
Email: btsscycle@gmail.com

Sickle Cell Alliance Foundation


Launched in May 2014, Sickle Cell Alliance Foundation is a passionate non-profit, community-based organization. It is committed to being a valuable resource to guide and help families and patients- children, teens and adults- living with the life-threatening sickle cell disease. Our goal is to ensure the appropriate programs and needed resources are available and offered to the patient and caregiver(s).

Delegates: Lisa Meatchem, Sonya Moore, LaTasha Heisel, Rochelle Bankhead
State: Ohio
Email: Lisa@scafcincy.com

Sickle Cell Warriors, Inc.


Sickle Cell Warrior’s Inc., is a non-profit charitable organization dedicated to education, empowerment, and awareness about sickle cell disease. Our mission is to inspire those affected by sickle cell. As of this minute, you are no longer alone. You have us- and we have you. Welcome to the family.

Delegates: Tosin Ola, Tiffany Walsh
State: California
Email: sicklecellwarriors@gmail.com

The Sickle Foundation of Tennessee


The Sickle Cell Foundation of Tennessee(SCFT) is a 501(c) 3 non-profit organization founded in 2008, by the late Dr. Trevor K. Thompson and Cherry N. Whitehead-Thompson. As an educator( Administrator with Memphis City Schools) and sickle cell disease consumer, Dr. Thompson championed the call for advocacy, educational support and social services for citizens impacted by sickle cell disease in Memphis, across the state of Tennessee, and the region of north Mississippi and eastern Arkansas. His efforts have enabled SCFT to provide educational awareness, through direct contact, via television, radio, print, and social media to more than 1,000,000 citizen across the Mid-South area. Our mission is to provide educational awareness, comprehensive social services and collective supportive impact to all person affected by Sickle Cell Disease within our service areas.

Delegates: Reginald French, Derek Renfroe, Lewis Bell, William Terrell, Jr.
State: Tennessee
Email: rfrench@sicklecelltn.org

Carol’s Promise Sickle Cell Foundation


Our mission is o increase the quality of life for individuals living with Sickle Cell Disease by awareness, support and education. Our events, programs, services and initiatives are geared around our missions three pillars which are education, awareness and support.

Delegates: Kenya Buckley, Cecelia Peppers-Johnson, D’Angela Stafford, Brandi Gaut
State: Texas
Email: info@carolspromise.org

Advancing Sickle Cell Advocacy Project Inc.


Advancing Sickle Cell Advocacy Project Inc. (ASAP) was formed in Spring of 2015 for the purpose of advocating, educating and improving the quality of life and health services for individuals living with Sickle Cell Disease (SCD), their families and networks of caregivers affected by sickle cell disease and related conditions, while advocating ongoing research for a cure for SCD. ASAP provides services to the Sickle Cell community in the form of support groups for patient and caregiver, as well as organizing and conducting focus groups to assess community needs and wants in reference to medical care and education. ASAP orchestrates forums, seminars and events for the edification of the SCD and the medical communities at large.The targeted population of ASAP’s efforts is the Sickle Cell community consisting of the patient and their family. ASAP provides services in Miami ­Dade, Broward, and Palm Beach Counties in South Florida.

Delegates: Kemba Gosier, Alma Brown, Monique Favors, Jeffrey Durandis
State: Florida
Email: kgosier@asapbeinformed.org

Hope For SCD


We are a health literacy NPO started by parents of a child with Sickle Cell Disease (SCD). Based in Denver, CO, we also provide international access to research based medical education materials.

Our mission to bridge the gap between providers and the lay community through research based health literacy tools and programs.

Delegates: Lisa Rose, Sean Rose, Nicole Maxwell, Austin Schlepp, Carol West
State: North Carolina
Email: Lrose@hopeforscd.org

The Red Chair Project


It is our mission to support, educate and empower warriors and their families through hosting events, visiting warriors and telling their stories.

Bold Lips for Sickle Cell



#BoldLipsForSickleCell is a 501 C3 non profit organization geared towards spreading Sickle Cell awareness and empowering individuals who has the illness. They have become a fresh and relevant movement, intended to put a bold and flattering spotlight on this disease and its community. We plan to continue to building a network of supporters and allies who will help make this disease as well-known and positively endorsed as the likes of breast cancer and other high profile diseases.

The mission of #boldlipsforsicklecell to educate and raise awareness for sickle cell disease through its advocates wearing bold lipstick colors. They are making a loud and boisterous statement which in turn gains attention along with conversations being sparked. They want to infiltrate surrounding communities by hosting events that are geared towards educating and building awareness for SCD.

Delegates: Jewel Darbone,  Delva Walker, Brandi Rogers, Bri Williams
State: North Carolina
Email: jeweldarbone.blfsc@gmail.com

Atlanta S.C.A.R., INC.


Atlanta S.C.A.R. (Sickle Cell Awareness Ride), is a grassroots organization with the goals of educating Georgians about Sickle Cell Trait (SCT) and Sickle Cell Disease (SCD) , while also raising money to bring communal aid to those who are afflicted with the disease.

Delegates: Lisa Dean-Touray, Laurie Dean, Art Scott, Tuwanna Mobley
State: Georgia
Email: Info@atlantascar.com



The International Association of Sickle Cell Nurses and Physician Assistants (IASCNAPA) is one of a few organizations composed of nurses, physician assistants, social workers, and other health care professionals dedicated to the care and health outcomes of individuals with sickle cell disease. The association was established in 1990, and at present, has approximately 350 members worldwide. IASCNAPA recognizes its responsibility to maintain high standards in the provision of quality and accessible health care services for individuals with sickle cell disease. IASCNAPA is committed to strengthening the relationship between nurses and physician assistants who care for patients with sickle cell disease.

The majority of IASCNAPA members are nurses and these individuals serve the sickle cell community in numerous ways to include everything from bedside nurses to academia.  One of our major goals is to use the knowledge and experience acquired as professionals working with patients living with sickle cell to contribute to improved community awareness of the needs of individuals with sickle cell disease and their families. We have members across the US and in other countries. Our most recent activities included coordinating sessions at the Sickle Cell Disease Association of America national conference in Baltimore, MD where we recruited speakers and helped to moderate the sessions that were focused on interdisciplinary collaboration in sickle cell disease management. IASCNAPA also co-sponsored a sickle cell awareness walk in Raleigh, North Carolina along with a new sickle cell foundation started by an individual living with sickle cell. We are engaged in the sickle cell community and are committed to educating health care providers as well as individuals and families living with sickle cell disease about this lifelong disease.

Delegates: Dr. Dora Clayton-Jones, Coretta Jenerette, Lori Vick, Dr. Cheedy Jaja
State: Tennessee
Email: Admin@iascnapa.org

Sickle Cell Foundation Support Group

The Support Group addresses the psycho-social/ nutritional issues in coping with Sickle Cell Disease.

Delegate: Parnel Abraham
State: Georgia
Email: parnel.abraham@emoryhealthcare.org

Supporters of Families with Sickle Cell Disease, Inc.



Supporter’s mission is to increase self-efficacy, improve the overall quality of life for patients living with sickle cell and thalassemia, children, adults, and their families within the State of Oklahoma; through systemic changes in patient care, disability policies, education, family support, economic self-sufficiency, awareness, and advocacy.


To increase the education, awareness, and advocacy of sickle cell disease/trait in Oklahoma and highlight the challenges and impact to individuals, families, and communities living with sickle cell/thalassemia disease/trait.


Decrease sickle cell disease in Oklahoma through community education, testing awareness, and advocacy.  Equip individuals, families, and the Oklahoma community agencies with training needed to support, advocate, and educate others on behalf of those affected by sickle cell/thalassemia disease/ trait.

Delegates: Velvet Brown, Cynthia Brooks, Dr. Sherri Tapp, Lorice Cooper
State: Oklahoma
Email: swithsicklecell@att.net

Sickle Cell Mommies Club

A place for moms with children with SC or mothers with SC or mothers with SC who are actively trying to conceive. Judgement free zone where we can talk and share about the victories and achievements and sometimes pitfalls of our type of motherhood.

Delegate: Shamir Jubert
State: Florida
Email: thescmc@gmail.com

The As One Foundation


Mission Statement: 

To educate and increase awareness of sickle cell trait while encouraging youth to achieve their dreams in the face of life’s challenges.

To support and enhance youth development by providing youth-centered activities and opportunities to develop character, values, sportsmanship, responsibility and positive relationships through a foundation that is supported and valued both nationally and internationally.

Delegates: Dr. Tomia Austin
State: Texas
Email: tomia@asonefoundation.org

Sickle Cell Champions Association

S.C.C.A. was formed to bring a male perspective to not only the youth, but also for new parents, and to
enlighten the communities of what Sickle Cell Disease is, how it affects the body, and what a child may
possibly encounter within their lives. We strive to be an effective voice, for the SCD patient, family member and male community. The program (“Champions Mentoring”) was created and implemented to ensure that we place focus on the empowerment, motivation and overall growth of adolescent males living with SCD.

Delegates: Clayton W. Andrews
State: Georgia
Email: sicklecellchampionsassociation@gmail.com

Journey’s By Grace Global Missions


Our mission is to encourage growth,development and change while promoting hope and faith in God’s word. To be a light in darkness, a voice in the wilderness. Journey’s by Grace is a mission of compassion, a non-profit organization in which the organization is committed and focused to address the social and spiritual need of the community. JBG works actively with groups and organizations to gain funding, collaborations, knowledge, resources and support for the people. Our mission is to share experience and knowledge to help others on their journey of life.

Delegates: Joyce El
State: Florida

AXIS Advocacy for Sickle Cell Disease


Grassroots organization dedicated to improving the lives of people living with Sickle Cell Disease through Advocacy, Education, Research and Legislation.

Delegates: Adrienne Shapiro
State: California
Email: Adrienne@axisadvocacy.org

Cayenne Wellness Center & Children’s Foundation


Dedicated to health promotion and disease prevention in children, adolescents, adults and their families diagnosed with sickle cell disease. Their mission is to improve the nutritional and mental health of the public and those diagnosed with sickle cell disease. We achieve this mission through education (our Annual SCD Educational Seminar; our upcoming Provider In-service Training program), research, and public awareness initiatives and community outreach programs (i.e., our Canvassing program that educates the public). We practice the science of helping people make changes in their lifestyle to improve their overall health and quality of life emotionally, physically, and spiritually.

Delegates: Dr. Carolyn Rowley, Dr. Keith Quirolo
State: California
Email: carolyn@cayennewellness.org

Totally Healed Network International, Inc.

Our mission is to bring health, hope and healing to the diseased community by using faith healing and holistic medicine as an alternative to modern medicine. We strive to educate, as well as be an advocate with support of patients, their families and the community.

Delegates: Angela Woods, Courtney Woods, Mary Moore
State: Georgia
Email: totallyhealed17@gmail.com

 1212 Foundation, Inc.

1212 Foundation is an organization designed to provide support and assistance to single parents living with a chronic illness and/or have children living with a chronic illness.

Delegate: Samyika Anderson
State: Texas
Email: samyika.anderson@gmail.com

Beautiful Gems Sickle Cell Foundation

Spread awareness about Sickle Cell Disease, SC trait through education, community health fairs, motivational speaking, and advocating locally. To also make connections with other community organizations, schools and health facilities

Delegate: Raven Cassidone
State: Virginia
Email: raven.cassidone@icloud.com

Lockhart Morgan Foundation


Lockhart Morgan Foundation is Atlanta Based organization which is focused on bringing awareness to our community, providing assistance to families in need and providing scholarships for Sickle Cell Students continuing their education.

Delegates: Gwen Morgan, Ed Morgan
State: Georgia
Email: lockhartmorganinfo@gmail.com

Sickle Cell Association of Texas Marc Thomas Foundation 


We provide numerous services to children, adults and families in Central Texas, San Antonio, the Texas Gulf Coast, and other affected with sickle cell disease and those carrying sickle cell trait. We provide education, research awareness, outreach, support group meetings, assistance and numerous other services.

Delegates: Linda Thomas, Emily O’Shea
State: Texas

 DreamSickle Kids Foundation


Our mission is to #MakeSickleCellPopular by increasing Awareness, educating ,and advocating for long term changes for the SCD population of Nevada to improve Equity and access to care for those affected by SCD while also addressing health disparities.

Delegates: Georgene Glass, Jennifer Riddle, Savone Grafton, Jasmine Grafton
State: Nevada
Email: Ginaglass@dreamsicklekids.org

SCDAA – Michigan Chapter 


The Sickle Cell Disease Association of America, Michigan Chapter (SCDAA – MI) provides education, assistance, and advocacy for individuals living with and families affected by sickle cell disease. Our services are available throughout Michigan and span lifetime needs.

Mississippi Sickle Cell Foundation


The mission of the Mississippi Sickle Cell Foundation is to enhance the quality of life for individuals living with sickle cell disease through the support of research, public activities and awareness, and patient/family education.

Delegates: Jeanne Tate, Zakiya Summers, Mary Teresa Walker, Kallie Hargrove
State: Mississippi
Email: mssicklecellfnd@yahoo.com

My Sickle Family Foundation

To support the sickle cell community while advocating for other sickle cell warriors; bringing knowledge and wellness to the community through health initiatives and financial literacy

Delegate: Etta Flanagan
State: Florida
Email: mysicklefamily@gmail.com

Sickle Cell Association of Houston


Serving as Houston’s leading sickle cell community based organization and coordination center, we provide various services aimed at achieving healthier outcomes for individuals living with theinheired rare genetic disorder known as sickle cell anemia. Sickle Cell Houston is staffed with certified genetics education counselors in the area of sickle cell disease providing an unmatched level of support and service for the sickle cell population. It is our commitment to the Greater Houston Metropolitan area for those living with sickle cell disease, that we hold ourselves accountable by proving programming that assures all persons living with sickle cell disease, can indeed live without limits.

Delegates: Tonya Prince
State: Texas
Email: tonya@sicklecellhouston.org

Sickle International Family Coalition

The vision of the Sickle International Family Coalition (SIFC) is to work with families affected by Sickle Cell Disease and Sickle Cell Trait worldwide to reduce the burden of living with these chronic conditions that show no outward symptoms.

Delegates: Dominique Friend, Tynisha hall
State: Georgia
Email: tynishahall@yahoo.com

The B Strong Group


The B Strong Group was created to support those with sickle cell disease and their caregivers in the Columbia area. We advocate for, empower and uplift our sickle cell warriors by spreading awareness of the disease, educating the community and engaging volunteers.

Delegates: Brenda Green, Patrick Green
State: South Carolina
Email: thebstronggroup@gmail.com

The Children’s Sickle Cell Foundation, Inc.


The Children’s Sickle Cell Foundation, Inc. provides quality programs for children and adults living with sickle cell disease and their families to help them face the educational, social and economic challenges caused by the disease across the lifespan.

Delegates: Andrea Matthews, Michael Matthews
State: Pennsylvania
Email: mmatthews@cscfkids.org

Sickle Cell Foundation of Minnesota


The Mission of The Sickle Cell Foundation of Minnesota is to improve the quality of life for individuals and communities in Minnesota who are affected by sickle cell disease and sickle cell trait. SCFMN is the only active community-based organization that exists to create education, awareness, and support for the Minnesota sickle cell community. We are passionately dedicated to carrying out this work through education, activities, programs and approaches that provide life skills and patient advocacy for equitable and affordable access to health care that improves life for today’s generation and those to come.

Delegates: Raenelle Blaylark, Raymond Blaylark
State: Minnesota
Email: sicklecellmn@gmail.com