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Warrior University

ABOUT WARRIOR UNIVERSITY

Warrior University is an online, curriculum-based educational platform, powered by the patients and caregivers of the Sickle Cell Consortium. All current classes, presentations and workshops are classified into four warrior university pillars:

      • Disease Education (ex. The Expert Patient Series)
      • Community-Based Organization/Certified Community Advocate Training & Best Practices
      • Research, Legislation & Policy
      • Warrior/Caregiver Life Skills

     

    Pillar Five Coming Soon

      • Provider Outreach & Education

     

    Although created, designed for (and by) the sickle cell patient/caregiver population, all classes in each educational series are open to the general public. Partners, individuals living with sickle cell disease, and caregivers may choose to enroll for warrior university certification. Certification of certain courses will be required to join the Consortium Speakers Bureau. Other courses are required for independent patient/caregiver Consortium credentialing.

Each EDUCATIONAL SERIES is part of one of the four Warrior University PILLARS.

  • Disease Education – This pillar focuses on existing sickle cell disease education. Classes will include courses and workshops as part of the Expert Patient Series. Advances level courses will require completion of prerequisite courses (or prerequisite exemption approval).
  • Community-Based Organization/Certified Advocate Training & Best Practices – This pilliar encompases classes and workshops designed to provide training in expert advocacy and non-profit best practices. Courses include public speaking, grant writing, fundraising, etc.
  • Research, Legislation & Policy – This pillar contains courses designed to keep sickle cell patients and caregivers up-to-date on the legislative and administrative policies of importance to the sickle cell community.
  • Life Skills – This pillar will include courses designed to ensure that rare disease patients have the knowledge and skill set to live their best life.

SPRING 2019

Download the Spring 2019 Course Catalog here.

 

BLOOD TRANSFUSIONS: WHAT YOU NEED TO KNOW AND DO

 

REGISTER

CURRICULUM

Class 1 – Blood Transfusion: How, Why, When

Class 2 – Keeping it Safe: Blood Matching

Class 3 – Keeping if Safe: Iron-Overload

Class 4 – African-American Blood Donation: Why are they important

Class 5 – Let’s talk: Patient-Provider Communication

 
 

FDA PATIENT ENGAGEMENT

 

 


Class 1 – Why get involved with FDA?

 

  • Regular and sustained patient advocacy with the FDA is important because:
  • Helps FDA understand the impact of sickle cell
  • Used in the approval decisions to balance the benefits and risks of new therapies
  • FDA wants and solicits patient input into their processes.

 

Class 2 – Building an advocacy resume

 

  • What is an advocacy resume
  • Why is it important to have an advocacy resume
  • How do I build an effective advocacy resume

 

 

Class 3 – How to get involved with FDA?

 

  • There are many ways the FDA solicits input from patients including product specific and context setting opportunities.
  • Key ways to get involved include: acting as a patient representative, participating in listening sessions and focus group sessions.
  • Helpful tips make it easier to take next steps and engage with the FDA.

 

 
 

GRANT WRITING INTENSIVE

 

This 2-Day in-person training series will be held immediately after the 4th Annual Leadership Summit at the DoubleTree by Hilton – Buckhead/Atlanta

March 17 & 18, 2019

 

REGISTRATION

 

We are pleased to announce Dr. Chic Smith, Asst. Dean at U.Va., (private/philanthropic grants), and Funmi Makinde, from the Office of Minority Health Resource Center, (government grants), will facilitate a Special 2-Day Grant Training series of Warrior University on March 17 and 18, immediately following the Leadership Summit.


Participants are invited to submit a draft Letter of Intent/Letter of Inquiry to be reviewed during a MOCK review session by Consortium reviewers. We will use the Eugene Washington PCORI Engagement Award for this purpose. To participate, visit the Eugene Engagement Award guidelines to familiarize yourself with the details of this program. Submit your mock LOI to Dominique Goodson at intern@sicklecellconsortium.org no later than Friday, March 8 at 4:59 pm EST. Your LOI will be reviewed by individuals experienced in LOI and grant review. Although these will not be the same individuals who review for PCORI, we encourage you to take this process very seriously. PCORI is accepting actual LOIs for this award (due May 31, 2019). Participating in the training DOES NOT guarantee that you will be awarded a grant by PCORI or any other granting organization. This training has been created to help partners become familiar with grant writing and to prepare to submit for grants in the future.

 

GENE EDITING, VECTORS, AND SICKLE CELL DISEASE

 

A discussion on Gene Editing, vectors, and a breakdown and explanation of the HIV comment from the 60 Minutes interview on sickle cell disease.

This class is part one of a continuing webinar series (coming Fall 2019) on Gene Editing and Gene Therapy.  Class one with Dr. Julie Kanter focuses on gene editing, vectors, and an explanation of the HIV comment made during the 60 Minutes interview on sickle cell disease.

April 24, 2019 | 6:00 pm EST

 

Learning Objectives

 

Gene Editing

Understand the role of vectors in gene editing.

 

EMBRACE SICKLE CELL EDUCATION AND TREATMENT

 

This educational series is part of the HRSA EMBRACE grant.
Coming Soon

FALL 2019

Coming Soon

CURRENT COURSE SCHEDULE

GENE EDITING, VECTORS, AND SICKLE CELL DISEASE

A discussion on Gene Editing, vectors, and a breakdown and explanation of the HIV comment from the 60 Minutes interview on sickle cell disease.

This class is part one of a continuing webinar series (coming Fall 2019) on Gene Editing and Gene Therapy.  Class one with Dr. Julie Kanter focuses on gene editing, vectors, and an explanation of the HIV comment made during the 60 Minutes interview on sickle cell disease.

  April 24, 2019 | 6:00 pm EST

 

Learning Objectives

  • Gene Editing
  • Understand the role of vectors in gene editing

Watch the recorded class here

EMBRACE SICKLE CELL EDUCATION AND TREATMENT

 

This educational series is part of the HRSA EMBRACE grant.
Coming Soon

DOWNLOAD FALL 2018 COURSE CATALOG

SPRING 2018

Social Media Series
Overview:   This 6-week series provides an instructional foundation on the most frequently used social media platforms and the role of social media as a tool for community engagement and to improve healthcare outcomes.
Curriculumhttps://sicklecellconsortium.org/wp-content/uploads/2018/02/Warrior-University-Social-Media-Learning-Series-CURRICULUM.pdf
More information & Recording:  https://sicklecellconsortium.org/warrior-u-social-media-series/

FALL 2018

COMPASS: Guiding the Direction of Community Engaged Sickle Cell Disease Research
Overview: Direct patient engagement to identify and define comparative effectiveness research questions of most value to the sickle cell community
Curriculum:
More information & Recording:  Click here to see the presentation