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Warrior University

ABOUT WARRIOR UNIVERSITY

Warrior University is an online, curriculum-based educational platform, powered by the patients and caregivers of the Sickle Cell Consortium. All current classes, presentations and workshops are classified into four warrior university pillars:

      • Disease Education (ex. The Expert Patient Series)
      • Community-Based Organization/Certified Community Advocate Training & Best Practices
      • Research, Legislation & Policy
      • Warrior/Caregiver Life Skills

     

    Pillar Five Coming Soon

      • Provider Outreach & Education

     

    Although created, designed for (and by) the sickle cell patient/caregiver population, all classes in each educational series are open to the general public. Partners, individuals living with sickle cell disease, and caregivers may choose to enroll for warrior university certification. Certification of certain courses will be required to join the Consortium Speakers Bureau. Other courses are required for independent patient/caregiver Consortium credentialing.

Each EDUCATIONAL SERIES is part of one of the four Warrior University PILLARS.

  • Disease Education – This pillar focuses on existing sickle cell disease education. Classes will include courses and workshops as part of the Expert Patient Series. Advances level courses will require completion of prerequisite courses (or prerequisite exemption approval).
  • Community-Based Organization/Certified Advocate Training & Best Practices – This pilliar encompases classes and workshops designed to provide training in expert advocacy and non-profit best practices. Courses include public speaking, grant writing, fundraising, etc.
  • Research, Legislation & Policy – This pillar contains courses designed to keep sickle cell patients and caregivers up-to-date on the legislative and administrative policies of importance to the sickle cell community.
  • Life Skills – This pillar will include courses designed to ensure that rare disease patients have the knowledge and skill set to live their best life.

SPRING 2019

THE SPRING 2019 SEMESTER HAS ENDED.  

DOWNLOAD THE SPRING 2019 COURSE CATALOG HERE.

 

 

RedHott Project Webinar series: overview

 

The Sickle Cell Consortium is excited to present the RedHott Project Webinar series as part of Warrior University.  The RedHott Project Webinar series was developed to educate individuals on the foundation for important blood transfusion terminology, how to avoid blood transfusion complications, and the critical need for increasing minority blood donations.

 

This series of Blood Transfusions: What You Need to Know and Do learning sessions delivered via online webinar, has been designed to provide a basic body of knowledge related to Sickle Cell Disease (SCD). Sickle Cell Disease is a chronic condition that causes red blood cells to form a sickle shape. These sickled cells block blood vessels and confine oxygen delivery throughout the body. This can cause people with SCD to suffer from organ failure and chronic pain crises. Blood transfusions are an important therapy for people suffering from the effects of SCD – but repeated transfusions can have harmful risks.

Blood Transfusions: What You Need to Know and Do

 

The learning series in Blood Transfusions: What You Need to Know and Do are designed with a basic understanding of SCD. These sessions will help attendees learn how to take the hands-on knowledge gained and use it to make rational and informed decisions on whether to receive blood transfusions or decline until another time.

 

Session 1: Blood Transfusions: How, Why, and When?

February 25, 2019| 6:30 PM EST | REGISTER | Dr. Jim Eckman | RECORDING

  • Understand the real risks and benefits of being transfused.
  • Understand the important complications of blood transfusion
  • Be able to list the medical history that should be tracked with each blood transfusion.
  • State why they should keep track of every transfusion: When, Where, Why, and How much?

 

Session 2:  Keeping it Safe: Blood Matching

February 27, 2019| 6:30 PM EST | REGISTER | Dr. Jim Eckman | RECORDING

This session will focus on the participants learning how to keep detailed records of their transfusion history, comprehending the potential hazards and benefits, and how to prevent and treat medical issues related to blood transfusions.

  • Describe their role in preventing blood transfusion complications.
  • Understand why they need to follow instructions for treating complications.

 

Session 3: Keeping it Safe: Iron Overload

March 4, 2019| 6:30 PM EST | REGISTER | Dr. Jim Eckman | RECORDING

This session will focus on the participants learning about serious blood transfusion complications and their effect on the body, as well as being able to provide an accurate account of their history with blood transfusions.

  • Describe iron overload and alloimmunization as blood transfusion complications.
  • State methods to prevent iron overload and alloimmunization.

 

Session 4: African-American Blood Donations: Why are they important?

March 6, 2019 | 6:30 PM EST | REGISTER |  Ashley Singleton | RECORDING COMING SOON

This session will focus on the participants learning the significance of minority blood donations and how to access education on effective procedures to increase minorities to donate blood.

  • Explain the importance of minority blood donations.
  • Access best practices to increase minority blood donations.

 

Session 5: Let’s Talk: Patient-Provider Communication

March 11, 2019| 6:30 PM EST | REGISTER | Dr. Raymona Lawrence | RECORDING

This session will focus on the participants learning to discern and advocate their needs when it comes to conveying to medical staff regarding transfusion requirements.

  • Differentiate when a transfusion is necessary and when it is not necessary.
  • Effectively communicate with medical providers about blood transfusion related needs.

 


Class 1 – Why get involved with FDA?

 

  • Regular and sustained patient advocacy with the FDA is important because:
  • Helps FDA understand the impact of sickle cell
  • Used in the approval decisions to balance the benefits and risks of new therapies
  • FDA wants and solicits patient input into their processes.

 

Class 2 – Building an advocacy resume

 

  • What is an advocacy resume
  • Why is it important to have an advocacy resume
  • How do I build an effective advocacy resume

 

 

Class 3 – How to get involved with FDA?

 

  • There are many ways the FDA solicits input from patients including product specific and context setting opportunities.
  • Key ways to get involved include: acting as a patient representative, participating in listening sessions and focus group sessions.
  • Helpful tips make it easier to take next steps and engage with the FDA.

 

 

This 2-Day in-person training series will be held immediately after the 4th Annual Leadership Summit at the DoubleTree by Hilton – Buckhead/Atlanta.  March 17 & 18, 2019

 

REGISTRATION

 

We are pleased to announce Dr. Chic Smith, Asst. Dean at U.Va., (private/philanthropic grants), and Funmi Makinde, from the Office of Minority Health Resource Center, (government grants), will facilitate a Special 2-Day Grant Training series of Warrior University on March 17 and 18, immediately following the Leadership Summit.
Participants are invited to submit a draft Letter of Intent/Letter of Inquiry to be reviewed during a MOCK review session by Consortium reviewers. We will use the Eugene Washington PCORI Engagement Award for this purpose. To participate, visit the Eugene Engagement Award guidelines to familiarize yourself with the details of this program. Submit your mock LOI to Dominique Goodson at intern@sicklecellconsortium.org no later than Friday, March 8 at 4:59 pm EST. Your LOI will be reviewed by individuals experienced in LOI and grant review. Although these will not be the same individuals who review for PCORI, we encourage you to take this process very seriously. PCORI is accepting actual LOIs for this award (due May 31, 2019). Participating in the training DOES NOT guarantee that you will be awarded a grant by PCORI or any other granting organization. This training has been created to help partners become familiar with grant writing and to prepare to submit for grants in the future.

 

 

Session 1: Introduction to Private Foundation/Philanthropic Grant Writing

Dr. Chic Smith | March 18 | Leadership Summit

  • Locating Private/Philanthropic Grant Resources
  • Identifying partnerships
  • Grant cycles

 

Session 2:  The VDC (Vision, Design, Capacity) Workshop – Improving the Skills of Technical Writers

Funmi Makinde, MPH, CHES | Elton Naswood | March 19 | Leadership Summit

 

The VDC (Vision, Design and Capacity) Workshops have been conducted in a variety of communities across the United States since 2002. The workshops have improved the writing skills of participants and increased their understanding of the components and usual requirements of completing successful grant applications. The trainings were initially offered to community-based organizations and have since expanded to address research funding at institutions of higher education in the United States.

  • Participants are sequentially engaged through lectures and interactive exercises, over 2 days.
  • Review principles of technical writing, practice strategies to relay information in grant applications
  • Share the tips and standards Grant Reviewers use as they screen applications going to the Funder.

 

Session 3: Navigating Online Grant Portals

Dr. Lakiea Bailey | March 19 | Leadership Summit

 

  • A review of online pharmaceutical grant portals
  • Step by step review of submitting funding proposals via online portalsCreating successful RFFs (Request for Funds)
 

GENE EDITING, VECTORS, AND SICKLE CELL DISEASE

 

A discussion on Gene Editing, vectors, and a breakdown and explanation of the HIV comment from the 60 Minutes interview on sickle cell disease.

This class is part one of a continuing webinar series (coming Fall 2019) on Gene Editing and Gene Therapy.  Class one with Dr. Julie Kanter focuses on gene editing, vectors, and an explanation of the HIV comment made during the 60 Minutes interview on sickle cell disease.

SUMMER 2019

EMBRACE sickle cell knowledge and become a patient expert.

Patient Education Webinars on Warrior University

                                                                                                                                        

 

Class Schedule – Tuesdays and Thursdays at 6:30 pm EST

Tues 7/2 – Diagnosis and treatment of acute chest syndrome – Dr. James Eckman

Tues 7/9 – Hydroxyurea in pediatric SCD – Dr. Peter Lane

Thur 7/11 – Hydroxyurea for treatment of adult SCD – James Eckman

Tues. 7/16 – Diagnosis and treatment of Avascular Necrosis  – Dr. James Eckman

Thur. 7/18 – Chronic pulmonary complications in people with SCD  – (PENDING)

Tues 7/30 -Stroke and other neurological complications in people with SCD (PENDING)

Thur. 8/1 – Healthcare maintenance for children with sickle cell disease (PENDING)

 

REGISTER 

JOIN THE CLASS 

LEARN MORE 

FALL 2019

Coming Soon

CURRENT COURSE SCHEDULE

EMBRACE sickle cell knowledge and become a patient expert.

Patient Education Webinars on Warrior University

                                                                                                                                        image.png

 

Class Schedule – Tuesdays and Thursdays at 6:30 pm EST

Tues 7/2 – Diagnosis and treatment of acute chest syndrome – Dr. James Eckman

Tues 7/9 – Hydroxyurea in pediatric SCD – Dr. Peter Lane

Thur 7/11 – Hydroxyurea for treatment of adult SCD – James Eckman

Tues. 7/16 – Diagnosis and treatment of Avascular Necrosis  – Dr. James Eckman

Thur. 7/18 – Chronic pulmonary complications in people with SCD  – (PENDING)

Tues 7/30 -Stroke and other neurological complications in people with SCD (PENDING)

Thur. 8/1 – Healthcare maintenance for children with sickle cell disease (PENDING)

REGISTER 

JOIN THE CLASS 

LEARN MORE 

DOWNLOAD FALL 2018 COURSE CATALOG

SPRING 2018

Social Media Series
Overview:   This 6-week series provides an instructional foundation on the most frequently used social media platforms and the role of social media as a tool for community engagement and to improve healthcare outcomes.
Curriculumhttps://sicklecellconsortium.org/wp-content/uploads/2018/02/Warrior-University-Social-Media-Learning-Series-CURRICULUM.pdf
More information & Recording:  https://sicklecellconsortium.org/warrior-u-social-media-series/

FALL 2018

COMPASS: Guiding the Direction of Community Engaged Sickle Cell Disease Research
Overview: Direct patient engagement to identify and define comparative effectiveness research questions of most value to the sickle cell community
Curriculum:
More information & Recording:  Click here to see the presentation

SUMMER 2019

Education and Mentoring to BRing Access to CarE for SCD  (EMBRACE)

 

A sickle cell Expert Patient series in collaboration with HRSA EMBRACE team.

Register Here

Join the Class Here

 

CLASS SCHEDULE

Tuesdays and Thursdays at 6:30 pm EST

 

Tues 7/2 Hydroxyurea of treatment of adult SCD – Dr. James Eckman

Tues 7/9 Hydroxyurea in pediatric SCD – Dr. Peter Lane

Thur 7/11 Diagnosis and treatment of acute chest syndrome – James Eckman

Tues. 7/16 Diagnosis and treatment of Avascular Necrosis  – Dr. James Eckman

Thur. 7/18 Chronic pulmonary complications in SCD  – Liz Kling (PENDING)

Tues 7/30 Stroke and other neurological complications  – Ross Fasano (PENDING)

Thur. 8/1 Pediatric Healthcare Maintenance –  (PENDING)

 

 

WATCH THE RECORDINGS: