Download the Spring 2019 Course Catalog here.
BLOOD TRANSFUSIONS: WHAT YOU NEED TO KNOW AND DO
Class 1 – Blood Transfusion: How, Why, When
Class 2 – Keeping it Safe: Blood Matching
Class 3 – Keeping if Safe: Iron-Overload
Class 4 – African-American Blood Donation: Why are they important
Class 5 – Let’s talk: Patient-Provider Communication
Class 1 – Why get involved with FDA?
- Regular and sustained patient advocacy with the FDA is important because:
- Helps FDA understand the impact of sickle cell
- Used in the approval decisions to balance the benefits and risks of new therapies
- FDA wants and solicits patient input into their processes.
Class 2 – Building an advocacy resume
- What is an advocacy resume
- Why is it important to have an advocacy resume
- How do I build an effective advocacy resume
Class 3 – How to get involved with FDA?
- There are many ways the FDA solicits input from patients including product specific and context setting opportunities.
- Key ways to get involved include: acting as a patient representative, participating in listening sessions and focus group sessions.
- Helpful tips make it easier to take next steps and engage with the FDA.
GRANT WRITING INTENSIVE
This 2-Day in-person training series will be held immediately after the 4th Annual Leadership Summit at the DoubleTree by Hilton – Buckhead/Atlanta
We are pleased to announce Dr. Chic Smith, Asst. Dean at U.Va., (private/philanthropic grants), and Funmi Makinde, from the Office of Minority Health Resource Center, (government grants), will facilitate a Special 2-Day Grant Training series of Warrior University on March 17 and 18, immediately following the Leadership Summit.
Participants are invited to submit a draft Letter of Intent/Letter of Inquiry to be reviewed during a MOCK review session by Consortium reviewers. We will use the Eugene Washington PCORI Engagement Award for this purpose. To participate, visit the Eugene Engagement Award guidelines to familiarize yourself with the details of this program. Submit your mock LOI to Dominique Goodson at email@example.com no later than Friday, March 8 at 4:59 pm EST. Your LOI will be reviewed by individuals experienced in LOI and grant review. Although these will not be the same individuals who review for PCORI, we encourage you to take this process very seriously. PCORI is accepting actual LOIs for this award (due May 31, 2019). Participating in the training DOES NOT guarantee that you will be awarded a grant by PCORI or any other granting organization. This training has been created to help partners become familiar with grant writing and to prepare to submit for grants in the future.
GENE EDITING, VECTORS, AND SICKLE CELL DISEASE
A discussion on Gene Editing, vectors, and a breakdown and explanation of the HIV comment from the 60 Minutes interview on sickle cell disease.
This class is part one of a continuing webinar series (coming Fall 2019) on Gene Editing and Gene Therapy. Class one with Dr. Julie Kanter focuses on gene editing, vectors, and an explanation of the HIV comment made during the 60 Minutes interview on sickle cell disease.
April 24, 2019 | 6:00 pm EST
Understand the role of vectors in gene editing.
EMBRACE SICKLE CELL EDUCATION AND TREATMENT
This educational series is part of the HRSA EMBRACE grant.