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We are delighted that you have decided to join the collective of community-based organizations (CBOs), patient and caregiver advocates, community partners and research/healthcare advisers.   We are eager to welcome all new partners to the 5th seated General Assembly of Patients, Caregivers and CBOs.  Credentialing for ALL NEW PARTNERS opens once a year. This year, the portal will open October 25, 2019 and close at 11:59 pm EST on December 6, 2019.  There are many ways to connect with the Consortium.  Please select the options that best match your roll in the sickle cell community.

EXISTING PARTNERS:  If you are already a credentialed partner of the Sickle Cell Community Consortium, it may not be necessary to complete the full credentialing process this year.  As amended by popular vote during the 2017 Business Meeting, CBOs will complete full credentialing once every 2 or 3 years and will complete a Partner Profile Update when full credentialing is not required.  If you completed full credentialing in 2017 you are ONLY required to complete your Partner Profile Update in 2019. ALL Independent Patient/Caregiver Partners must complete a Partner Profile Update each year.

CREDENTIALED CBOs: We invite all sickle cell-focused community-based organizations to partner with the Consortium.  A Credentialed CBO is a not-for-profit organization or foundation, whose mission aligns with the Consortium goal to amplify the power of the patient by ensuring that the sickle cell patient/caregiver is at the center of advocacy, awareness, education, research, policy and legislation.  CBO partners may vary in focus, purpose, application of mission, or dissemination of resources, but are aligned in overall objective to improve healthcare outcomes for the sickle cell community.

Please review the contents of this website carefully before deciding if you would like to partner with the Sickle Cell Community Consortium.  To join us as a Credentialed CBO, complete the CBO CREDENTIALING FORM found on the link below.  Please be certain to update ALL requested documents.  This step must be completed for full evaluation for partnership.

Sponsored Patient Organization & Junior CBOs: There are many groups doing wonderful work in the community that are not yet ready for full credentialing or plan to remain a sponsored group (ie support groups).  To partner with the Consortium as a Junior CBO or SPO, complete the appropriate form below.

Please note:  Junior CBOs must actively work towards obtaining official 501c3 status within two years of joining the Consortium team.  (This is NOT required for SPOs.) The Consortium will provide guidance to assist if needed.

Independent Patient and Caregiver Advocates: Patients and Caregiver are the lifeblood of the Consortium as they determine the direction of all Consortium platforms and projects and identify the needs and gaps within the sickle cell community. We welcome all sickle cell patients and caregivers to join us by completing the Independent Advocate Form below.