We are delighted that you have decided to join the collective of community-based organizations (CBOs), patient and caregiver advocates, community partners and research/healthcare advisers. We are eager to welcome all new partners to the 5th seated General Assembly of Patients, Caregivers and CBOs. Credentialing for ALL NEW PARTNERS opens once a year. This year, the portal will open Friday, November 5, 2021 and close at 11:59 pm EST on Friday, January 21, 2022. There are many ways to connect with the Consortium. Please select the options that best match your roll in the sickle cell community.

Community Based Organizations:

We invite all sickle cell-focused community-based organizations to partner with the Consortium. A Credentialed CBO is a not-for-profit organization or foundation, whose mission aligns with the Consortium goal to amplify the power of the patient by ensuring that the sickle cell patient/caregiver is at the center of advocacy, awareness, education, research, policy and legislation. CBO partners may vary in focus, purpose, application of mission, or dissemination of resources, but are aligned in overall objective to improve healthcare outcomes for the sickle cell community.

Please review the contents of this website carefully before deciding if you would like to partner with the Sickle Cell Community Consortium. To join us as a partner CBO, complete the CBO Credentialing Form found on the link below. Please be certain to update ALL requested documents. This step must be completed for full evaluation for partnership.

Junior Community Based Organizations:

There are many groups doing wonderful work in the community that are not yet ready for full credentialing or plan to remain a sponsored group (i.e. support groups). To partner with the Consortium as a Junior CBO, complete the Jr. CBO Credentialing Form. Please note: Junior CBOs must actively work towards obtaining official 501c3 status within two years of joining the Consortium team. (This is NOT required for SPOs.) The Consortium will provide guidance to assist if needed.

Sponsored Patient Organizations:

Sponsored Patient Organizations are patient or caregiver groups, who do not intend to seek 501c3 status, but are instead sponsored by a healthcare provider or other healthcare entity. Patient/Caregiver support groups are often in this category. SPOs may also be sponsored by fully credentialed CBOs no fewer than 4 years prior to sponsorship. SPO sponsors accept fiscal responsibility for the sponsored SPO. To partner with the Consortium as a Sponsored Patient Organization, complete the SPO Credentialing Form.

Independent Patient and Caregiver Advocates:

Patients and Caregiver are the lifeblood of the Consortium as they determine the direction of all Consortium platforms and projects and identify the needs and gaps within the sickle cell community. We welcome all sickle cell patients and caregivers who are active advocates to join us by completing the Independent Patient or Caregiver Advocate Form.

International CBO

This year we are delighted to formally welcome NEW & EXISTING international partners. We currently are only able to accept NPOs for partnership. International IPCAs should consider becoming a delegate for an existing international CBO partner. For more questions, contact Shelfina Wilkins, International Partner Liaison, swilkins@sicklecellconsortium.org.

Community Partners

Community Partners are for-profit and non-profit organizations who support the sickle cell community as part of their mission, but are not organized specifically for sickle cell disease. This group must schedule a meeting with Lakiea Bailey to finalize partnership.

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