A unified platform of parents and caregivers focused on building connections, increasing access to education
A network of male patients, caregivers and CBOs, dedicated to ensuring that men have a
#ShowUpSpeakUp for Sickle Cell, An initiative aimed to increase patient and caregiver participation in conferences,
A workgroup of patients and caregivers focused on addressing patient/caregiver-identified concerns with the transition process.
Patient-centered initiative focused on debunking myths, proving mental health resources, facilitating open mental health discussions,