A unified platform of parents and caregivers focused on building connections, increasing access to education
A network of male patients, caregivers and CBOs, dedicated to ensuring that men have a
#ShowUpSpeakUp for Sickle Cell, An initiative aimed to increase patient and caregiver participation in conferences,
A workgroup of patients and caregivers focused on addressing patient/caregiver-identified concerns with the transition process.
Patient-centered initiative focused on debunking myths, proving mental health resources, facilitating open mental health discussions,
This is the first in our series of patient power educational literature. Our patients created informational brochures for Warriors, to Warriors!