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Junior CBOs

The Sickle Cell Community Consortium is a multi-stakeholder collective comprised of community-based organizations (CBOs), patient and caregiver advocates, community partners along healthcare and research advisors.  Collectively these partners form the General Assembly of CBOs, the decision-making body of the Consortium, and we are delighted that you have decided to join the team.

Ways to partner with the Consortium:

Junior CBOs: 
There are many groups doing wonderful work in the community that are not yet prepared for full credentialing. The Consortium works to provide these groups with resources necessary to fully establish themselves as 501(c)3 not-for-profit organizations. Junior CBOs must be actively working towards obtaining official non-profit status and will have obtained 501c3 status within two years of joining the Consortium team. The Consortium will provide guidance to assist if needed.

Junior CBOs Information Form

Fields marked with an * are required

*Use this space to provide a description of the jCBO outlining active projects, platforms, events, and/or initiatives that impact the sickle cell community.

*Upload a png or jpeg image of your official logo.

*Upload a document containing the full name, professional affiliation, position/office on board. If Board positions are not yet filled, write N/A and describe plan to recruit.

*List and describe the most recent events, activities, projects, and services to benefit the sickle cell community. If none yet, write N/A.

a. Which Stakeholder Group(s) does the jCBO impact (select all that apply)? (Patients, Caregivers, Medical Providers, Industry, Academia)

b. Define the area of impact (local, state, regional, global)

c. Describe your range of impact (ex. my jCBO impacts the state of Alabama; my jCBO impacts the entire southwest region of the county; my jCBO impacts Clayton County in Georgia).

d. How many patients/families served last year?

Average number of sickle cell community members that your organization reaches through social  media, events, newsletters, etc.

*Please list your jCBO's Facebook, Twitter, Instagram, or other social media handles.

Upload here

*Outline of proposed future projects, events, activities, or services to be launched as part of this jCBO. Upload here.

*Plan to achieve independence/501c3 status. Include plans to raise funds to apply for tax exemption (Form 1023), incorporation with state, develop/recruit Board of Directors. Upload here.

*jCBOs must have  a sponsor to support infrastructure and serve as fiscal agent for fundraising events. An existing CBO must have been a partner for a minimum of four (4) years prior to the date of application. Must have prior approval from SC3 to serve as a fiscal agent.

*Letter of support from fiscal agent or a letter of recommendation from an existing SC3 CBO.

*Outline of shared, ongoing partnership with a diverse range of stakeholders, demonstrating ability and willingness to engage with others through structured collaboration.