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* Warrior University FDA (1)Warrior University FDA (1)
Time: 7:00 pm
Why Get Involved with the FDA?
Learn about the FDA and how it incorporates patient input and the role of the patient voice. Regular and sustained patient advocacy with the FDA is important because: 1)Helps FDA understand the impact of SCD, 2)Used in the approval decisions to balance benefits and risks of new therapies, 3)FDA wants and solicits patient input into their processes.
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* 2019 Scientific Meeting2019 Scientific Meeting
Pain in Sickle Cell Disease SIG
American Pain Society
Milwaukee, WI
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* 2019 Scientific Meeting2019 Scientific Meeting
Pain in Sickle Cell Disease SIG
American Pain Society
Milwaukee, WI
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* 2019 Scientific Meeting2019 Scientific Meeting
Pain in Sickle Cell Disease SIG
American Pain Society
Milwaukee, WI
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* 2019 Scientific Meeting2019 Scientific Meeting
Pain in Sickle Cell Disease SIG
American Pain Society
Milwaukee, WI
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* National Sickle Cell AdvocacyNational Sickle Cell Advocacy
SCDAA National Sickle Cell Advocacy Day 2019
Washington, DC
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* National Sickle Cell AdvocacyNational Sickle Cell Advocacy
SCDAA National Sickle Cell Advocacy Day 2019
Washington, DC
* Warrior U - Advocacy ResumeWarrior U - Advocacy Resume
Time: 7:00 pm
Building Your Advocacy Resume: The Advocacy resume is an efficient way to professionally catalog and share the work that you do in the sickle cell community. Workshop participants will learn how to create an advocacy resume and will work with others to develop their own.
* SCANJ UniverSoul Circus!SCANJ UniverSoul Circus!
Time: 7:00 pm
The Sickle Cell Association of New Jersey
Get Connected Pop Up Event!
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10
* World Orphan Drug Congress USAWorld Orphan Drug Congress USA
The Global Orphan Drug Conference & Expo
Gaylord National Harbor Hotel
Oxon Hill, MD
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* World Orphan Drug Congress USAWorld Orphan Drug Congress USA
The Global Orphan Drug Conference & Expo
Gaylord National Harbor Hotel
Oxon Hill, MD
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12
* World Orphan Drug Congress USAWorld Orphan Drug Congress USA
The Global Orphan Drug Conference & Expo
Gaylord National Harbor Hotel
Oxon Hill, MD
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* SC 40th Annual Road RaceSC 40th Annual Road Race
Time: 8:00 am
7k Run/4k Walk Sickle Cell 40th Annual Road Race
Hosted by the Sickle Cell Foundation of GA Inc.
Tri-Cities High School
2575 Harris St.
East Point, GA 30344
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* Passion for People Blood DrivePassion for People Blood Drive
Time: 12:00 pm
Nu Season Nu Day Church & Ministries partnered with the American Red Cross
The Zeta Center 12:00pm-4:pm
4501 Reisterstown Road, Baltimore, MD 21215
Schedule your donation @ Redcrossblood.org Sponsor Code: nuseason
Events@nuseasonnuday.org or call 443-885-0733
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* National Academy of SciencesNational Academy of Sciences
Time: 3:16 am
Meeting 2: Addressing Sickle Cell Disease: A Strategic Plan & Blueprint.
Keck Center (E Street Conference Rm)
500 Fifth St., NW WDC 20001
* Warrior University FDA (2)Warrior University FDA (2)
Time: 7:00 pm
Learn how to get involved with FDA programs and practical engagement tips. There are many ways the FDA solicits input from patients including product specific and context setting opportunities. Key ways to get involved include: acting as a patient representative, participating in listening sessions and focus group sessions. Helpful tips make it easier to take next steps and engage with the FDA. Registration required.
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* Management of SCD SymposiumManagement of SCD Symposium
Time: 8:00 am
Sickle Cell Foundation of Minnesota Presents
Amherst H. Wilder Center
451 Lexington Pkwy N.
St. Paul, MN 55104
* The Warrior DriveThe Warrior Drive
Time: 12:30 pm
Dream Sickle presents
The Warrior Drive
3930 Cambridge St
Las Vegas, NV 89119
RSVP
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* The Truth About Gene EditingThe Truth About Gene Editing
Time: 6:30 pm
Warrior University
Gene Editing, Vectors, & Sickle Cell Disease
Presenter: Dr. Julie Kanter Washko
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* 6th Annual MUSC SCD Symposium6th Annual MUSC SCD Symposium
The Longitudinal Course of Sickle Cell Disease
Medical University of South Carolina Drug Discovery Building
Charleston, SC
Registration Required
* A Genetics Pop-UP SCDA Genetics Pop-UP SCD
Time: 9:00 am
Mountain States Regional Genetics Network Pop-Up Program
Sickle Cell Association of Texas
Marc Thomas Foundation
Location: Houston Community College
Conference Ctr 2nd fl
3100 Main Street, Houston, TX 77002
$25 Registration
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Events calendar manager: Sharonda Sikes
calendar@sicklecellconsortium.org
Please utilize this form to provide updates for Sickle Cell Community Consortium (SC3) events calendar
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