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Independent Patient and Caregiver Advocate

The Sickle Cell Community Consortium is a multi-stakeholder collective comprised of community-based organizations (CBOs), patient and caregiver advocates, community partners along healthcare and research advisors.  Collectively these partners form the General Assembly of CBOs, the decision-making body of the Consortium, and we are delighted that you have decided to join the team.

Ways to partner with the Consortium:

Independent Patient and Caregiver Advocate: 

Patients and Caregiver are the lifeblood of the Consortium as they determine the direction of all Consortium platforms and projects and identify the needs and gaps within the sickle cell community.  We welcome all sickle cell patients and caregivers to join us.

Independent Patient/Caregiver Advocate Information Form

Fields marked with an * are required

Please tell us whether you are a patient or caregiver by selecting an option below.

A brief yet well-rounded description of your involvement in the sickle cell community. (This should be written in third person.)

A summary outlining your skill-set, accomplishments and involvement in active projects, platforms, events, and/or initiatives that impact the sickle cell community. Advocacy Resume (include Sickle Cell conventions/symposiums & awareness events in 2019).