Project PEEP: Patients Empowered and Educated Providers
The educational materials and online modules of Project PEEP were
developed by the Sickle Cell Consortium in partnership with Dr. Lakiea
Bailey (warrior), Lisa Rose (caregiver parent), Dr. Coretta Jenerette
(caregiver nurse), and Dr. Carolyn Rowley (warrior) of Cayenne Wellness
Center & Children’s Foundation.
This project was funded, in part, by a generous grant from Global Blood
Therapeutics Access to Excellent Care for Sickle Cell Patients (ACCEL)
Grant Program.
Project PEEP was designed to address unmet needs directly identified
and prioritized by a collective of sickle cell patients, caregivers, and
community-based organizations (CBOs). Our objective is to provide the
tools and resources to improve communication and increase positive
patient/provider interactions with the goal of receiving quality and
expedient care. This innovative curriculum for both healthcare providers
(HCPs) and sickle cell disease (SCD) patients utilizes a combination of
evidence-based medical, scientific, and adult-learner-specific guidelines.
Thank you to Global Blood Therapeutics, Lisa Rose (Education Specialist,
Adult Learner Curriculum Design), Dr. Coretta Jenerette, Dr. Lakiea Bailey,
and Dr. Carolyn Rowley for your hardwork on this project.
– Sickle Cell Consortium, www.sicklecellconsortium.org
BLOOD TYPING | BLOOD COMPONENTS | VITAL SIGNS
Hospital infrastructure is a technical term that relates to the way a hospital is organized. This module will explore the most common structure within a hospital, including overall hospital management and the hierarchy related to doctors and nurses specifically. Most topics in this module are never fully explained to patients and caregivers, but that is about to change!
Every hospital is required to have a system in place for patient and caregiver complaints. Topics for complaints can vary dramatically from cold food to infection control to racism. However, the process for filing a complaint remains fairly consistent from hospital to hospital, regardless of the topic. This course will discuss 3 paths both internally to navigate if and when you need to file a complaint related to the care you or your loved one has (or is currently!) receiving.
Health Care Providers (HCPs) work directly with sickle cell patients, however, many of them are not adequately trained on the illness, which in turn can affect their ability to have empathy for the patient and utilize truly patient centered care as a standard practice. This course will dive deeper into these topics and help you increase your baseline understanding of sickle cell.
HCPs work directly with sickle cell patients, however, many of them struggle to properly care for this population due to false perceptions and biases. This course will highlight common myths that affect HCP perception and interfere in the quality of care provided to sickle cell patients.
Hospital infrastructure is a technical term that relates to the way a hospital is organized. This module will explore the most common structure within a hospital, including overall hospital management and the hierarchy related to doctors and nurses specifically. Most topics in this module are never fully explained to patients and caregivers, but that is about to change!
Outside of specially trained hematologists, Healthcare Providers (HCPs) that work directly with sickle cell patients, are often inadequately prepared to treat this medically complex, rare illness. However, the majority of emergency care for sickle cell patients is provided by HCPs lacking in disease education, proper treatment guidelines, and empathy. This module will give an overview on what non sickle cell HCPs are lacking and how you can use this knowledge to determine your comfort level with them providing your care.
Past experiences often determine how we will respond in the future. This applies as well in the medical arena. When patients experience negative, disruptive and even dangerous hospital interactions, they often begin avoiding medical care until it is critical and potentially life-threatening. It is exceedingly important to not only break this cycle, but to feel comfortable seeking treatment since the benefits of medical care can save a life. This module will review on the 3 most common reasons patients with sickle cell delay treatment, exploring how Healthcare Provider perceptions and behavior affect these delays.
Health Care Providers (HCPs) work directly with sickle cell patients, however, many of them struggle to properly care for this population due to false perceptions and biases. This course will highlight common myths that affect HCP perception and often interfere in the quality of care you or your loved one receive.
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